Registered: December 2007
Location: Toledo, OH
Scrapbooking is wonderful to pass memories on about the good things, but itís also a great vessel to pass important information and a strong attitude too. My current medical issues are genetic, so not only is my brother at risk, but someday a grand-niece or great-grand-nephew may benefit from whatís happening with me now and how Iím dealing with it. It will offer more help in a bright colored bound book than it will in my personal journal!
Credits: Boo Boos and Band-aids by Twin Mom Scraps
The MRI in January said I had 5 disks in my lower back that were between bulging and herniated. Dr. M---------, referred me to a neurosurgeon. Okay, that will mean surgery, but I planned for that with all online classes this semester so I could do my school work in residential rehab after.
Dr. H----, the neurosurgeon, looked at the MRI results, asked me a few questions and then asked me to do some things like walking a straight line and standing with my feet together I really couldnít do either one. Dr. H---- told me that lower back issues would definitely not cause balance problems. His office ordered an MRI of both the upper spine and neck with a return visit scheduled with him in a couple weeks.
For the second MRI, my head and neck had to be caged for stabilization before they moved me into the MRI tube. I started thinking that I may not have been claustrophobic before the first MRI, but I could see how I might get there. At my follow up visit with Dr. H----, he showed me the films from the MRI and the report from the hospital. No pinched nerves or disks trouble. The hospital suggested a CT Scan. Dr H---- did specify benign, but if there was a tumor on my brain, that could definitely cause a loss of balance or sensation. This time I left his office with a prescription for a CT scan and a few more nerves twitching in me than I had before. Even if benign, a brain tumor? ďIt's not diagnosed, just a test, shake it off, Nani.Ē But, the nerves never did go away, for three weeks between visits with Dr. H---- my mind was definitely focused on that possibility more than anything.
I wasnít called to schedule my follow up appointment sooner, which if there was something serious, Iím sure they would have, so the week of my appointment I was ever so slightly more at ease, but the walking trouble seemed to be getting a bit worse. After the first MRI, my physical therapy ended and I pretty much had a pain prescription for muscles and an anti-inflammatory prescription. I was a stressed about the small bits of progress Iíd achieved in therapy were fading away!
On my return to Dr. H----, he first let me now there was not a tumor. I was glad to finally hear that from the doctor! But there was evidence of a different problem. My cerebellum is too small for an almost 45-year old woman. There doesnít appear that there are any other parts of my brain that arenít right from the CT Scan, but the cerebellum, which controls motor functions, is too small. Dr. H---- told me I needed to see a specialist and there was just not anyone in Toledo who was qualified. He had his scheduler call Cleveland Clinic to set up an appointment as soon as they could get one.